What can mothers of autistic children expect from the waiting room when they are waiting?

Abstract

Autism Spectrum Disorder is characterized by alterations in neurodevelopmental functions related to communication, social interactions, and behavior. The degree of severity is measured according to the level of support the individual requires, and in the most severe cases, care provided by a multidisciplinary team is necessary. Care for an autistic child generally falls on mothers and demands exclusive dedication. Although there is a need for a support network to share responsibilities, reality proves quite different. The waiting rooms of Child and Adolescent Psychosocial Care Centers (CAPSi) are filled with mothers accompanying their children to various consultations and therapies, and their reports point to a solitary journey. The objective of this study was to understand the reality of mothers of autistic children in the waiting rooms of the CAPSi in Juazeiro do Norte and Barbalha, in the Cariri region of Ceará. This is a descriptive study with a qualitative approach, involving two focus groups whose participants were intentionally selected. For data collection, discussion circles were held with mothers of autistic children in the two mental health facilities, and the data were analyzed using discourse analysis. It was found that the waiting room is seen as a space with functions beyond waiting, as it is where these women (re)recognize themselves, exchange experiences, and form a unique support network among themselves. There is also an expectation that this environment will offer relaxation and leisure activities for mothers to enjoy while waiting for their children.